Self-management for Individuals who Have Experienced a Stroke or Brain Injuries

Life after a stroke or brain injury can be challenging, but it's important to recognize the strength and resilience of individuals facing these circumstances. The path to recovery is often filled with ups and downs, and it requires actively managing one's own well-being. This means adapting and taking control of the effects of the injury in everyday life. Research shows that how people manage their condition on a daily basis greatly impacts their current and future health and well-being. Self-management means actively participating in one's own recovery and well-being. It allows individuals to make informed decisions, set goals, and develop strategies to improve their quality of life. For those who have had a stroke or brain injury, self-management is a vital part of the rehabilitation process that extends to all aspects of everyday life.

Key Aspects of Self-Management:

  1. Setting Realistic Goals:

    •  Set achievable short-term and long-term goals and create specific plans to achieve them. 
    • Celebrate small victories along the way to stay motivated and keep track of your accomplishments. 

  1. Building a Support System: 

    • It's important to have a strong support network, including family, friends, and healthcare professionals. Don't hesitate to ask for help when you need it. Friends, family, and teachers are there to support you.
    • Connect with support groups and organizations specializing in brain injury recovery for additional resources and support. 

  1. Developing Coping Strategies: 

    • Explore different coping mechanisms to handle challenges. Use tools like calendars, alarms, or sticky notes to help you remember important things. They can act as your brain's little helpers.
    • Practice mindfulness, relaxation techniques, and stress management. Try relaxation exercises when you feel stressed. Taking deep breaths and engaging in calming activities can work wonders for your brain. 

  1. Making Healthy Lifestyle Choices: 

    • Maintain a balanced and healthy lifestyle by focusing on proper nutrition, regular exercise, and sufficient sleep.
    • These lifestyle choices greatly impact your overall well-being. 

  1. Advocacy and Education: 

    • Education will empower you to for yourselves and your needs as resources and information will enhance understanding about brain injuries and available resources.

Spotlight on Capstone Student Julie’s Program:

Julie is leading a program for people who have had a stroke or brain injury called Be Well. The program focuses on self-management, which means learning to take care of yourself. The group will help people who had a stroke or brain injury to improve their health and wellness and be active in their lives. Participants will meet online once a week to learn about different topics, get tips for healthy living, and have fun. 

If you are interested in participating in this program or know someone who could benefit from it, please contact Julie.suto@midwestern.edu. It's important to remember that self-management is not something you have to do alone - it's about working together to create a supportive environment. By joining forces, we can empower each other to lead fulfilling lives even after experiencing brain injuries. Stay empowered, stay resilient!

Guest Blogger: Anne Momgbet, OTS.

Resources:

  1. BrainLine:

    • BrainLine provides information and resources about preventing, treating, and living with TBI. It includes articles, videos, and a community forum.

  2. National Stroke Association:

    • National Stroke Association offers resources and tools for stroke survivors and their families, including information on recovery and support.

  3. American Stroke Association:

    • American Stroke Association is a division of the American Heart Association, this site provides resources on stroke prevention, treatment, and recovery, including lifestyle changes for a healthier life.

  4. Brain Injury Association of America:

    • Brain Injury Association of America is an organization offers resources and support for individuals with brain injuries and their families. It includes information on living with a brain injury and finding local support groups.

  5. Rehabilitation Institute of Chicago - Brain Innovation Center:

    • RIC - Brain Innovation Center focuses on rehabilitation and recovery after brain injuries. They provide information on research, treatments, and rehabilitation programs.

  6. The TBI Model Systems Program:

    • TBI Model Systems Program is a program that supports research and provides resources for individuals with traumatic brain injuries. It includes information on living with TBI and research updates.

  7. MyMove - Stroke Resources:

    • MyMove - Stroke Resources offers a list of resources for stroke survivors, covering topics like recovery, rehabilitation, and support organizations.

  8. MedlinePlus - Traumatic Brain Injury:

    • MedlinePlus – TBI provides comprehensive information on traumatic brain injury, including symptoms, diagnosis, treatment, and rehabilitation.

References:

Audulv, Å., Hutchinson, S., Warner, G., Kephart, G., Versnel, J., & Packer, T. (2021). managing everyday life: self-management strategies people use to live well with neurological conditions. Patient Education and Counseling, 104(2), 413-421. https://doi.org/10.1016/j.pec.2020.07.025

Cadilhac, D., Hoffmann, S., Kilkenny, M., Lindley, R., Lalor, E., Osborne, R., … & Batterbsy, M. (2011). A phase ii multicentered, single-blind, randomized, controlled trial of the stroke self-management program. stroke, 42(6), 1673-1679. https://doi.org/10.1161/strokeaha.110.601997